shared decision making, renal pathology, kidney biopsy, photo-elicitation
Ari Pollack (PI, Seattle Children’s Hospital)
Jaime Snyder (Co-PI, Co-Investigator)
Ari Pollack (PI) with others including Jaime Snyder (Co-Investigator), “Kids CoLab! – Supporting collaborative decision making with youth impacted by chronic kidney disease,” R01 Submitted to NIH/NIDDK. $1,665,809. 07/2022-06/2027.
Ari Pollack (PI, Seattle Children’s Hospital) and Jaime Snyder (Co-Investigator, UW), “Designing a Visual Decision Aid for Shared Decision Making after Renal Biopsy.” Funded by the
Kidney Precision Medicine Program (KPMP) Glue Grant, $159,042. 6/01/20-3/31/23.
Julia C. Dunbar, Emily Bascom, Wanda Pratt, Jaime Snyder, Jodi M. Smith, and Ari H. Pollack (2022). “My Kidney Identity: Contextualizing pediatric patients and their families kidney transplant journeys,” Pediatric Transplantation, DOI: 10.1111/petr.14343
Ari H. Pollack and Jaime Snyder (2020). “Reflecting on patient-generated photographs of the pediatric renal transplant experience,” Pediatric Transplant. 2020 Oct 28:e13896. doi: 10.1111/petr.13896. Epub ahead of print. PMID: 33111458.
Ari Pollack, Simon, T., Jaime Snyder, and Wanda Pratt (2019). Creating Synthetic Patient Data to Support the Design and Evaluation of Novel Health Information Technology. Journal of Biomedical Informatics, 95, p. 103201.
Through a series of studies, we have been investigating the role visualizations and visual methods like photo-elicitation can play in upporting shared decision making between patients, families, and clinicians.
For example, we have focused on the ways that pediatric patient and their caregivers review and interpret renal pathology images in efforts to make the diagnostic and prognostic value of renal biopsies more transparent. Our goal is to create visualization tools that enable these images to be used more effectively to support evidence based comparisons among patient peer groups and to better integrate value- and evidence-based decision making within collaborative care models.
Through a series of interviews and photo-elicitation activities with children patients from Seattle Children’s Hospital and adult patients from Kidney Precision Medicine Project, in addition to a multi-year grant from the National Institutes of Health focused on collaborative decision making with adolescent pediatric patients, this work identifies (1) information requirements to support patient understanding and exploration of renal pathology images and other types of medical visualizations, (2) factors that impact shared decision making involving renal pathology images and other types of lab imagery, and (3) patient and family values used during shared decision making using techniques like photo elicitation and visual probes.